Michelle
I first started to have symptoms of Bile Acid Diarrhoea (BAD) when I was 18. At the time I was working in London as a student nurse. I used to have symptoms every two to three months and I'd have days of running to the toilet. At that time, I went to see my GP and I was told that I just had IBS (Irritable Bowel Syndrome).
When I went to the appointment it was the first time anybody had actually, I felt, listened to me. My mum came with me and she felt exactly the same. He just said "I'm not going to read anything, you just tell me about you and about your symptoms".
Anyway, when I went in I was probably feeling a bit fed up, well no, I definitely was… and he said that they knew what it was and it was just the most shocking and amazing feeling because I couldn't get my head around it that actually, there was something wrong with me. I'd been told for 23 years that all I had was IBS (Irritable Bowel Syndrome).
If I look back since the day I got my diagnosis, my life has significantly changed. I've been to loads of concerts, I've been on holidays. I quite happily go out all day long and don't even think about planning what I'm going to do or where the toilets are or anything like that.
I've joined a running group and I run regularly with them and go to running events. It's just life changing being able to do those things and do what everybody else does without thinking about it.
Listening to other peoples' stories can really help you to come to terms with life with BAD and realise you're not alone.
Videos have been created in association with GE Healthcare for awareness purposes.
The information in the stories represents a specific point in time when these videos were published. The videos have not been updated and no representation should be made concerning patient's current condition. The information in the stories should under no circumstances be used as a substitute for professional medical advice.